What do you people want?
Posted: under March.
Tags: autoimmune dysfunction, autonomic dysregulation, cardiovascular problems, Chronic Fatigue Syndrome, orthostatic intolerance, POTS Comments (11)
Saturday, March 20, 2010
What do we want?
We want the reality of our disease to be understood and acknowledged by the rest of the world.
We want the ongoing sick joke about being tired to end.
We want our autonomic dysregulation, our orthostatic intolerance, our POTS, our autoimmune dysfunction, our cardiac and cardiovascular problems, our hearing and vision problems, … and more … to be taken seriously.
We want programs and research and support like other “real” diseases have. MS. MD. Arthritis. Cancers.
When have you EVER heard of any of this type of thing for Chronic Fatigue Syndrome?
EVER.
I didn’t think so.
Tags: autoimmune dysfunction, autonomic dysregulation, cardiovascular problems, Chronic Fatigue Syndrome, orthostatic intolerance, POTS
Hear, hear!
From another CFS bloggin’ Jodi
Hi there.
I went to your blog. Nicely done.
How’s about we do a link exchange, hmmm?
Jody
Absolutely! I’ve popped you in my blogroll.
Thanks Jodi,
I will put you on my blogroll and on the links page of my website as well.
Jody
Yes, yes, yes, yes, and never.
So, I was nominated for this Happiness Award, and I’d like to pass it on to you. Details are on my most recent blog post. Take care!
Well thanks, Jodi!
I checked it out on your blog, and I will make a point of meeting the requirements over the next few days.
Happiness is!
Hi, Jody! Congrats from one ME blogging Happiness Award winner to another. Ah - the irony of it all!
come see me at :
http://richard-lucas.blogspot.com/
Richard,
Congratulations back to you on being an Award winner as well.We are pretty impressive now, aren’t we?
I have gone to your blog and found it a delight.
Okay with you if I put a link to it on my website and blog?
You tell them, Jody!
LOL
We’ll all tell ‘em, Laurel!