Saturday, March 20, 2010
What do we want?
We want the reality of our disease to be understood and acknowledged by the rest of the world.
We want the ongoing sick joke about being tired to end.
We want our autonomic dysregulation, our orthostatic intolerance, our POTS, our autoimmune dysfunction, our cardiac and cardiovascular problems, our hearing and vision problems, … and more … to be taken seriously.
We want programs and research and support like other “real” diseases have. MS. MD. Arthritis. Cancers.
When have you EVER heard of any of this type of thing for Chronic Fatigue Syndrome?
I didn’t think so.